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National Amyloidosis Day 2023: Date, History, Significance and Facts

Mrs Trisha Gardiner-Wilson of the "Adam Gardiner Fund Incorporated (A.G.F)" registered the holiday in conjunction with the Westmead Amyloidosis Centre to raise awareness and funds for further research into the disease.

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National Amyloidosis Day 2023: Date, History, Significance and Facts

National Amyloidosis Day 2023: National Amyloidosis Day is observed annually in Australia on May 8. Mrs Trisha Gardiner-Wilson of the “Adam Gardiner Fund Incorporated (A.G.F)” registered the holiday in conjunction with the Westmead Amyloidosis Centre to raise awareness and funds for further research into the disease. Amyloidosis is a rare condition induced by the accumulation of amyloid in specific body parts. Amyloidosis claimed one in a thousand lives annually.

HISTORY OF NATIONAL AMYLOIDOSIS DAY

Amyloidosis is a rare disease induced by the accumulation of an abnormal protein known as ‘amyloid.’ Amyloid, which is produced in the bone marrow, can be deposited in other tissues and organs of the body. The disease can potentially affect the heart, liver, spleen, kidneys, nervous system, and digestive tract.

Mrs. Trisha Gardiner-Wilson of the Adam Gardiner Fund Incorporated (AGF) and the Westmead Amyloidosis Centre registered the day as Australian National Amyloidosis Day in 2016. The Amyloidosis Gene Foundation is a non-profit organisation that provides support and raises awareness about amyloidosis. Additionally, they raise funds for the Westmead Amyloidosis Clinic.

Mrs. Gardiner-Wilson devised the holiday in memory of her amyloidosis-deceased husband. Jade Vincent, the daughter of Garry Paxton, who had recently been diagnosed with A.L. amyloidosis, also contributed to the establishment of the holiday. She suggested adopting a crimson ribbon with the words ‘Amyloidosis Day, May 8’ as the holiday’s symbol. In 2018, Vincent tragically lost her father to the disease. Thankfully, the ribbon was soon adopted by patients and family members affected by amyloidosis, one of whom made a box of red ribbons and sold them for a gold coin to raise funds for the research programme at the Princess Alexandra Hospital (P.A.H.) Amyloidosis Centre.

HOW TO PARTICIPATE IN NATIONAL AMYLOIDOSIS DAY

Spread knowledge

More individuals must be made aware of amyloidosis and the difficulties confronted by those affected. You can contribute to the amyloidosis awareness campaign by raising awareness and participating in both virtual and physical awareness campaigns.

Provide guidance

Additionally, you can contribute to the cause by volunteering or donating to a local amyloidosis foundation. Your assistance will be valued.

Employ the hashtag

Use the hashtag #amyloidosisday to spread the word about National Amyloidosis Day. Let’s encourage more people to discuss amyloidosis.

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Five essential facts about amyloidosis

There are four forms of amyloidosis.

Light chain (A.L.), inflammation (A.A.), dialysis-related (D.R.A.), and hereditary and age-related amyloidosis (A.T.T.R. and familial amyloid polyneuropathy) are the four most common forms of amyloidosis.

Amyloidosis has no cure

Unfortunately, no cure for amyloidosis has been discovered.

Amyloidosis is treatable.

Although there is no known cure for the disease, there are available treatments that can delay its progression.

The onset age is advanced

Typically, the advent of amyloidosis occurs between the ages of 55 and 60.

Patients with cancer are at a greater risk

Amyloidosis affects 15% of patients suffering from multiple myeloma malignancy.

WHY AMYLOID SYNDROME DAY IS IMPORTANT

Amyloidosis is more widely known.

This day raises awareness about the causes, symptoms, and consequences of amyloidosis. It gives individuals the opportunity to learn more about this rare disease.

Awareness increases monetary support

National Amyloidosis Awareness Day enables fundraising for the cause. These funds are frequently allocated to amyloidosis research centres and amyloidosis clinics.

Patients and their families receive assistance

Due to the rarity of amyloidosis, patients may feel isolated. This day reassures them that they are not fighting alone.

NATIONAL AMYLOIDOSIS DAY DATES

Year Date Day
2023 May 8 Monday
2024 May 8 Wednesday
2025 May 8 Thursday
2026 May 8 Friday
2027 May 8 Saturday

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