International Ataxia Awareness Day 2023: International Ataxia Awareness Day is observed on September 25 each year. Ataxia is a classification of neurological disorders. Individuals with ataxia struggle with balance, walking, speaking, and swallowing, despite the fact that any region of the body may be affected. As a rare disease, its effects on a person’s mental and physical well-being must be discussed.
The historical context of International Ataxia Awareness Day
Ataxia is a rare disease that affects one out of every 50,000 people in the globe. Ataxia, which is derived from the Latin word for “disorder,” is caused by cerebellar damage. Some cases of cerebral ataxia are genetic, but not all. Additional causes of cerebellar ataxia include stroke, tumors, viral infections, and head trauma.
National Ataxia Foundation annually observes International Ataxia Awareness Day. In 1957, this organization was established in the United States. The mission of the foundation is to raise public awareness of this neurological disorder. In addition, they endeavor to enhance the patients’ confidence who are affected by this disease. This day also aims to raise awareness of ataxia among physicians, who, if properly informed, can help detect early symptoms and provide prompt medical care to potential victims. The medical community continues to make progress in its pursuit of a cure for this disease.
Ataxia should not be taken lightly because it can occasionally be fatal. The disease is also progressive and intensifies over time. Physical and emotional support is of the uttermost importance for ataxia patients, as it will aid in disease management and keep their spirits up.
On International Ataxia Awareness Day, do your part by volunteering for awareness campaigns, donating funds, educating yourself, or having a health exam to detect any possible signs of the disorder.
Five essential elements
- As the overwhelming majority of ataxia is inherited, genes play a crucial role in determining the condition’s spread.
- Presymptomatic genetic testing is available for certain types of ataxia to determine whether you are likely to develop the disease or a carrier.
- Multiple forms of ataxia exist, such as ataxia-telangiectasia, Friedreich’s ataxia, multiple system atrophy, and spinocerebellar ataxia.
- Several types of ataxia are treatable, such as vitamin E deficiency-induced ataxia, which can be treated with vitamin E supplements.
- Some cases of severe ataxia can be fatal in infancy or early adulthood, while others may improve or worsen over time.
INTERNATIONAL ATAXIA AWARENESS DAY DATES