Congenital Diaphragmatic Hernia Action Day 2023: On April 19, we observe Congenital Diaphragmatic Hernia Action Day. Congenital Diaphragmatic Hernia, or C.D.H., is a condition that occurs when the diaphragm a thin muscle membrane separating the chest cavity from the abdomen is underdeveloped or has a hole. The partial development of the hole causes the abdominal organs, such as the intestines, stomach, and liver, to ascend into the thoracic cavity. C.D.H. is a less well-known condition that is quite prevalent worldwide. David Y. Ige, the governor of Hawaii, began the day with a C.D.H. awareness campaign.
HISTORY OF CONGENITAL DIAPHRAGMATIC HERNIA ACTION DAY
What would it feel like to have all of our abdominal organs shoved into our chest? How congested are the lungs and the heart? Can you fathom how severe this condition would be? That is the definition of a congenital diaphragmatic hernia. C.D.H. is a congenital defect caused by a malformed or underdeveloped diaphragm. Unfortunately, this is a prevalent condition that is less well-known and requires more attention. It is a life-threatening condition that can result in infant mortality if complications arise. There are two main types of complications: pulmonary hypoplasia and pulmonary hypertension. The mortality rate is between 40 and 62%.
In 1679, Dr. Lazare Rivière first described C.D.H. after observing the condition during the autopsy of a 24-year-old individual. Also in 1701, Dr. Luther Emmett Holt described the clinical and postmortem manifestations of C.D.H. Throughout the centuries, the condition was investigated in greater depth and described in numerous papers. However, the first effective surgical treatment did not occur until 1902. The advancement of neonatal medicine has enhanced the infant surgical survival rate. The development of ultrasound scanning technology has also facilitated the early diagnosis of the disease by physicians. This further facilitates early treatment initiation and risk reduction.
The two leading causes of respiratory failure in neonates with C.D.H. are pulmonary hypoplasia and pulmonary hypertension. These conditions can significantly reduce lung volume and restrict blood flow to the lungs. Typically, the initial phase of treatment consists of intubation to secure the airway. Generally, plication of the diaphragm is used to correct diaphragm malformations. Various factors, such as the severity of complications, genetics, the extent of the hernia, etc., influence the surgical outcome.
HOW TO Observe Congenital Diaphraging Hernia Awareness Day
Assist those in need.
Numerous neonates throughout the world are affected by C.D.H. Some of their parents lack funds and knowledge, which can prove fatal for their infants. Try to raise awareness and assist everyone in obtaining a fighting opportunity.
Distribute information
You can fundraise, be a volunteer for organisations, and even financially assist those in need. But beyond that, you can also educate people about the complications of C.D.H. and how to obtain assistance. The timely delivery of pertinent information can save lives.
Wear a C.D.H. ribbon for awareness
You can participate in an important event by donning the pink, blue, and yellow C.D.H. Awareness Ribbon. Share ribbons with your peers and encourage them to wear them while educating those who are unaware of the significance of the day.
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5 FACTS YOU DIDN’T KNOW ABOUT C.D.H.
Early diagnosis
Ultrasound can detect C.D.H. as early as 16 weeks into a pregnancy.
High incidence
Approximately fifty percent of C.D.H. repair patches will reoccur.
One in 3,600
According to research, one in every 3,600 newborns in the United States is born with C.D.H.
Probability of death
The documented overall mortality rate for C.D.H. ranges from 40 to 48%.
terrifying figures
According to some investigations, approximately 147 infants are born each day with C.D.H.
WHY CONGENITAL DIAPHRAGMATIC HERNIA ACTION DAY IS IMPORTANT
Unawareness can be hazardous.
The ideal way to observe the day is by spreading knowledge about the condition. This knowledge could save a few lives by making people aware of the long-term effects of C.D.H. Raising awareness can also facilitate support and acceptance for those affected.
It can diminish life quality.
C.D.H. can significantly impact life quality. Before the newborn’s condition can cause complications and lasting harm, he or she should be treated appropriately. The day can inject significant impetus and energy into the field’s desperately needed medical research.
Early diagnosis is crucial
The key to reducing the severity and effects of C.D.H. is early diagnosis. This condition can be fatal to neonates if not treated promptly.
CONGENITAL DIAPHRAGMATIC HERNIA ACTION DAY DATES
| Year | Date | Day |
|---|---|---|
| 2023 | April 19 | Wednesday |
| 2024 | April 19 | Friday |
| 2025 | April 19 | Saturday |
| 2026 | April 19 | Sunday |
| 2027 | April 19 | Monday |
